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獻愛救童助呼吸 慈善音樂會
香港醫學會慈善基金將於二零二三年七月十六日（星期日）晚上假香港浸會大學大學會堂舉行年度慈善音樂會。是次活動所籌得的善款和相關收益，不扣除任何開支，將全數撥捐「兒童家居呼吸支援會」(支援會)，加強社會大眾對需要長期在家使用呼吸機兒童的了解和關注，並提升患者及其家屬的生活質素。
香港醫學會副會長陳沛然醫生在記者招待會中提及香港醫學會(醫學會)自1920年成立以來，匯集了在香港執業和服務市民的會員醫生，致力促進醫療界的福祉及堅守「維護民康」的宗旨，為香港市民爭取更好的醫療福利及向他們提供正確的健康資訊。醫學會深明社會上有不少弱勢社群需要關注和幫助。本會在過去三十年來一直透過合唱團和管弦樂團的公開表演籌募善款，其後並成立香港醫學會慈善基金，為不同社會服務團體籌款，致力幫助有需要的弱勢社群。香港醫學會慈善基金主席楊協和醫生在會上表示，香港醫學會成立慈善基金後，更有系統地籌辦各項慈善活動及分配善款，令社會上更多弱勢社群受益。楊醫生續稱，今年慈善基金的委員一致贊成支持「兒童家居呼吸支援會」，認為該項目能提升患者及其家屬的生活質素，關顧其身、心健康，讓善款發揮更大效益。為表支持，香港醫學會將資助慈善音樂會的全部行政及籌辦費用，約港幣十二萬元。他亦呼籲社會大眾踴躍捐輸，成為別人的祝福。
「兒童家居呼吸支援會」主席陳玉玲女士表示「兒童家居呼吸支援會」是在2017年成立，在2019年正式註冊成為慈善機構。成立目的主要分為兩大項：
- 支援呼吸機使用者及其家屬
- 提升社會及公眾對家居呼吸機使用者及其家屬的了解和關注
陳玉玲女士本身有一名11歲兒子，自細患有脊髓肌肉萎縮症一型，日常生活要依靠不同儀器協助呼吸，需要定時為他抽痰，平日需以輪椅代步。作為一位在職的媽媽，陳女士深深體會到照顧上的壓力。而透過加入支援會，可以認識多些醫護人士和同路人，互相支持! 支援會透過舉辦講座、研討會等，邀請醫生、護士和同路人分享，為會員提供照顧及護理互助資訊，讓無論患者或家屬在抗病路途上可以互相鼓勵及支援，變得不再孤單! 今次慈善音樂會籌得的捐款，可以用作製作公眾教育短片，提高公眾人士對家居呼吸機使用者及其家屬的了解和關注。希望大眾都多多支持!
記者會上另一名分享者周佩珊(Josy)由三個月大確診脊髓肌肉萎縮症一型起，下半身不能活動，僅餘右手拇指和食指可以活動，但憑驚人的意志力，克服身體的障礙和局限，終於在2022年於香港大學英國文學系學士畢業，成為首位大學畢業的脊髓肌肉萎縮症一型患者。她現正供讀碩士課程。她亦為大家分享在學校及生活時遇過公眾對使用呼吸機的誤解。
在Josy過往的大學生活，撇除使用無障礙設施，其實同一般大學生無異，Josy有留意到他們會對她感好奇但又不敢主動和她談話，要大學講師透過專題分組時邀請Josy加入，先可以融入其他同學的圈子，而有一些同學其後更能夠成為她大學生涯的好隊友。Josy亦發覺一些年輕人對呼吸機使用者都有些誤解，例如以為使用呼吸機時候換氣的聲音是會散播細菌，而抗拒和她談話，其後Josy主動和他們講解有關呼吸機正確的資訊，他們明白後，誤會亦即時得到解決。另外，Josy多次出入商場都有保安員請她使用扶手電梯，但輪椅人士使用扶手電梯是有很大安全風險，所以她都需要主動解釋輪椅人士是不能夠使用扶手電梯上落的。雖然Josy及同路人使用家居呼吸機，但其實和一般人無異，她希望今次慈善音樂會籌款，可以令到更多公眾特別是年輕人了解多些呼吸機使用者，不需要怕接觸他們。
獻愛救童助呼吸慈善音樂會
日期: 二零二三年七月十六日(星期日)
時間: 晚上八時正
地點: 香港浸會大學大學會堂
註: 香港醫學會慈善基金將送出音樂會門票予捐款港幣伍佰元或以上人士。
二零二三年六月廿一日
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21 June 2023
Charity Concert for Paediatric Home Respiratory Support Society
The Hong Kong Medical Association Charitable Foundation(the Foundation) will stage its Annual Charity Concert on Sunday, 16 July 2023 at the Academic Community Hall, Hong Kong Baptist University. This year, Paediatric Home Respiratory Support Society (PHRESS) was selected as the beneficiary. All funds raised, without any cost deduction, will be used to support PHRESS to increase public awareness on the children who are home ventilation support users and improve the quality of life of them and their families.
Dr. CHAN, Pierre, Vice-President of the Hong Kong Medical Association(HKMA), mentioned that the HKMA founded in 1920 brings together all medical practitioners serving the people of Hong Kong. Upholding the motto “Safeguarding the health of the people”, the HKMA strives to enhance the healthcare system in Hong Kong and enrich the medical knowledge of the general public all along. The HKMA is well aware that there are people desperately in need of assistance and concern. The HKMA has been raising funds for people in need for 30 years through the public performances of its Choir and Orchestra. Dr. YEUNG Hip Wo, Victor, Chairman of the Foundation, told that The Foundation was established by the HKMA to coordinate charitable activities and allocate the raised funds, so that more underprivileged groups in the community could be reached. Dr. YEUNG expressed it was unanimously agreed to grant the support to PHRESS this year as their program would directly improve the well-being of the patients and their families. In support of this worthy course, the HKMA would bear all production and administration expenses of the charity concert, which are about HK$120,000. He also called for the loving and generous support of the public.
Ms. Wenus CHAN, Chairperson of PHRESS, stated that PHRESS was established in 2017 and registered as a charity organisation in 2019. There are two main reasons for its establishment:
- Provide support to home ventilation support users and their families
- Raise public awareness and concern about the home ventilation support users and their families
Ms. Chan is the mother of a 11-year old boy who was diagnosed with Spinal Muscular Atrophy Type I at a young age. His daily life depends on different equipment to support breathing, mucus suction has to be done regularly and he is on wheelchair. As a mother with a daily job, Ms. Chan understands the pressure of the caretaker. By joining PHRESS, she gets the support from meeting different medical professionals and patients. PHRESS organises talks and seminars, inviting doctors, nurses and patients for sharing, providing members with caretaking and nursing information, let patients and their families get the encouragement and support along the path and not feel lonely any more! The funds raised from the charity concert will be used to make public educational videos, raise public awareness and concern about the home ventilation support users and their families. PHRESS seeks public support!
During the press conference, another sharer, Josy, who was diagnosed with Spinal Muscular Atrophy Type I since she was three months old. Her lower body is static, only the thumb and the index fingers of her right hand can move. Yet, with her tremendous determination, she overcame her body constraint and limitation, she graduated from the University of Hong Kong with the bachelor degree in English Literature in 2022. She is the first person with Spinal Muscular Atrophy Type I who has a university degree. She is pursuing her master degree currently. She also shared her school and daily life when she came across the misconception the public had on home ventilation support users.
During Josy’s university years, apart from the need for accessible facilities, she was no different from other students. She recalled that her classmates were curious about her, yet they would not dare to talk to her, until the lecturer separated them into groups then Josy could join them. Some of the classmates later became her buddies in university. Josy found that some young people had misconception on the home ventilation support users, e.g. they thought that changing air of the home ventilation support would spread germs which made them avoid talking to her. Later, Josy took the initiative to explain to them with the right information about home ventilation support, once they understood, the misconception did not last. Also, there were a few times she was told by the security guards of the malls to use the escalators. Yet, it was very risky for them to use escalators, she needed to explain that wheelchair users could not use escalators actually. Though Josy and other patients use home ventilation support, they are no different from other people. She hopes that this charity concert can raise funds so more public especially young people can understand home ventilation support users, so they will not be afraid of getting in touch.
Charity Concert for Paediatric Home Respiratory Support Society
Date: 16 July 2023 (Sunday)
Time: 8:00 pm
Venue: Academic Community Hall, Hong Kong Baptist University
Remarks: The Hong Kong Medical Association Charitable Foundation would offer complimentary ticket(s) for donations of HK$500 or above.
編輯備忘：香港醫學會成立於一九二零年，旨在聯繫政府、各公立醫療機構、大學及私人執業的醫務工作者，交流意見，團結一心。醫學會致力將最新的醫療資訊及醫務發展傳遞與會員，提倡會員遵行專業操守，進而服務社會，維護民康。
Notes to editors: The Hong Kong Medical Association, founded in 1920, aims to bring together Hong Kong's government, institutional, university and private medical practitioners for an effective exchange of views and co-ordination of efforts. The foremost objective of the Association is to safeguard and promote public health. The Association speaks collectively for its members and aims to keep its members abreast of medical ethics, issues and advances around the world. In fulfilling these goals, the association hopes to better serve the people of Hong Kong.
查詢 ：袁巧蓮女士 / 葛樂詩女士 電話 ：2527 8941
網址 ：www.hkma.org 電郵 ：media@hkma.org